What is AGS?

Aicardi-Goutieres syndrome

Here are some links to information on the type of Leukodystrophy we believe Bryce and Annalise may have...AGS5.  The doctors have found one mutation on the SAMHD1 gene so far.

http://ulf.org/aicardi-goutieres-syndrome

http://ghr.nlm.nih.gov/condition/aicardi-goutieres-syndrome

http://ghr.nlm.nih.gov/gene/SAMHD1

http://patients.aan.com/disorders/index.cfm?event=view&disorder_id=1112

http://www.cafamily.org.uk/medical-information/conditions/a/aicardi-gouti%C3%A8res-syndrome/??page=5&f=P