Here is something I wrote on facebook Sunday morning. I wanted to put it here as well, because it applies to all of you!
Thank you so much for all of the prayers! You are all very powerful pray-ers. Bryce had a fairly uneventful night and sounds so much better this morning. I seriously am amazed. God is great and miracles do happen! Hopefully Bryce will be able to keep some liquids down today. His poor lips are so dry and cracked, but I think he is on the mend. Thank you all so much. Happy Easter!
I truly feel that it was a miracle that he did not have to go to the ER Saturday night. He was really struggling. I believe so strongly in the power of prayer. I often do not feel that my faith and prayers alone are enough to pull my children through some of these times, but with the prayers and faith of all of you, I have witnessed many miracles over the years. Bryce and I were not able to attend church on Easter Sunday, but we were all able to be home and together as a family...and for that I am very grateful!
Although not yet completely out of the woods, Bryce continues to heal. Today he was able to keep some food down, mainly bananas, applesauce, oatmeal, some coconut oil, and coconut water. It is so great to be able to feed him real food through his tube. I was able to feed him small amounts of the foods I would feed any child who was recovering from a stomach flu. It feels so good knowing exactly what is going into his body and knowing that he will not have any ill effects from added chemicals or other things he does not need as he is trying to heal. I love it!
He continues to run a low grade fever and is still struggling with a cough and some lung congestion, but shows signs of improving and feeling better. Yesterday we got a few smiles out of him. It was so good to see that smile again. He let me know multiple times that he wanted a bath, so before I bed, I gave him a nice, long bath. Annalise joined us by playing peek-a-boo at the side of the tub. It was so cute!
Today Bryce wanted to play the iPad and spend some time on the floor. I was thrilled to see him roll over onto his tummy again today and then onto his back. It is always a bit scary as these kids go through illnesses as these are the times that we often see further regression, so I can always breathe a little bit easier once they begin to return to their normal. We are praying that he will be completely well and back to his normal soon!
Annalise on the other hand is still struggling to get back to her normal. She seems to be over her illness, but continues to struggle with her strength, swallowing, and speaking. We were beginning to notice a bit of regression in these areas before she became sick, but there has definitely been a noticeable change over the past week/ week in a half. She has been much more cranky (even for a 3 year old :) and wants to be held or close to mom most of the time. "I need you" has been her phrase of choice many times throughout the day. It makes me smile and cry all at the same time. She talks, but we are having a very hard time understanding the words that are coming out of her mouth. She is resorting to a lot more signs and pointing as she tries to get us to understand. She tires very easily. She gets so frustrated! I don't blame her though. I can't even imagine how tough it must be to talk to someone and have them no longer be able to understand what you are saying...especially when they could just a very short time ago! We are hoping and praying that these are just lasting effects from her illnesses during the past month and that she too will soon be back to her normal. I am not ready to accept that this is her new normal. I just can't do it yet!
Thank you so much for all of the prayers! You are all very powerful pray-ers. Bryce had a fairly uneventful night and sounds so much better this morning. I seriously am amazed. God is great and miracles do happen! Hopefully Bryce will be able to keep some liquids down today. His poor lips are so dry and cracked, but I think he is on the mend. Thank you all so much. Happy Easter!
I truly feel that it was a miracle that he did not have to go to the ER Saturday night. He was really struggling. I believe so strongly in the power of prayer. I often do not feel that my faith and prayers alone are enough to pull my children through some of these times, but with the prayers and faith of all of you, I have witnessed many miracles over the years. Bryce and I were not able to attend church on Easter Sunday, but we were all able to be home and together as a family...and for that I am very grateful!
Although not yet completely out of the woods, Bryce continues to heal. Today he was able to keep some food down, mainly bananas, applesauce, oatmeal, some coconut oil, and coconut water. It is so great to be able to feed him real food through his tube. I was able to feed him small amounts of the foods I would feed any child who was recovering from a stomach flu. It feels so good knowing exactly what is going into his body and knowing that he will not have any ill effects from added chemicals or other things he does not need as he is trying to heal. I love it!
He continues to run a low grade fever and is still struggling with a cough and some lung congestion, but shows signs of improving and feeling better. Yesterday we got a few smiles out of him. It was so good to see that smile again. He let me know multiple times that he wanted a bath, so before I bed, I gave him a nice, long bath. Annalise joined us by playing peek-a-boo at the side of the tub. It was so cute!
Today Bryce wanted to play the iPad and spend some time on the floor. I was thrilled to see him roll over onto his tummy again today and then onto his back. It is always a bit scary as these kids go through illnesses as these are the times that we often see further regression, so I can always breathe a little bit easier once they begin to return to their normal. We are praying that he will be completely well and back to his normal soon!
Annalise on the other hand is still struggling to get back to her normal. She seems to be over her illness, but continues to struggle with her strength, swallowing, and speaking. We were beginning to notice a bit of regression in these areas before she became sick, but there has definitely been a noticeable change over the past week/ week in a half. She has been much more cranky (even for a 3 year old :) and wants to be held or close to mom most of the time. "I need you" has been her phrase of choice many times throughout the day. It makes me smile and cry all at the same time. She talks, but we are having a very hard time understanding the words that are coming out of her mouth. She is resorting to a lot more signs and pointing as she tries to get us to understand. She tires very easily. She gets so frustrated! I don't blame her though. I can't even imagine how tough it must be to talk to someone and have them no longer be able to understand what you are saying...especially when they could just a very short time ago! We are hoping and praying that these are just lasting effects from her illnesses during the past month and that she too will soon be back to her normal. I am not ready to accept that this is her new normal. I just can't do it yet!
1 comment:
My heart and prayers are always with you and your angels!
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