One year ago today our lives shifted again as Annalise was diagnosed with Unspecified Leukodystrophy. Although Annalise has lost many of her previously acquired skills over the year, I am so thankful that she is still able to sing!
Today this year has been a much better day. We are enjoying a day of respite at the Ryan House. Our good friends, the Hauer family came by today and played with us for a while here. It was so great to see them again! They are such amazing people!
Thursday, December 22, 2011
I came across this post early this morning after being up multiple times throughout the night with our two special children. These are all feelings I feel or have felt throughout the last 3 years. She really hit the nail on the head with this one! There is so much guilt, love, anger, frustration, uncertainty, and incredible joy that I feel throughout our journey. I'm glad I am not the only one who feels this way and that someone had the ability to share. Excellent post!