I know many people do not like to use the word hate. In the past I have even been known to tell my children, "we don't hate". But today there is something I hate. It is this horrible disease we call Leukodystrophy! Although there is so much good in our children, there is NOTHING good about Leukodystrophy!
Leukodystrophy has taken the lives of two more children! A sweet baby girl just 6 months old, and a beautiful 6 year old boy. The 6 year old had AGS and passed away after a three week battle in the hospital due to a respiratory infection. My heart goes out to their families.
Once again, these children are children that I only got to know through the internet and yet my heart hurts for their families and for the short lives they had here on this earth. I dread the day that one of my close friends loses a child to this horrid disease, or the day that one of my own children no longer has the strength to overcome something like a common cold and I have to tell them good-bye. How do you ever prepare for that! Oh how I hate, loathe, despise this disease!