Friday, June 24, 2011

Good-bye Elaina Faith

Today the world lost a beautiful girl to leukodystrophy.  http://www.elainassmiles.org  She had AGS which is what we believe Bryce and Annalise have.  Although we have never met her in person, she has touched our lives.   My heart goes out to her parents and brothers and all who knew her.    She will be missed here on Earth, but now she can continue the fight against Leukodystrophy from the other side where she is able to run, dance, play, and continue to smile.  Enjoy your new freedom sweet girl!

1 comment:

Dacia said...

Tammy, I'm so sorry. I read her blog - what a delightful young lady! I hope she is running around and laughing, too!