One Year

One year ago today our lives shifted again as Annalise was diagnosed with Unspecified Leukodystrophy.  Although Annalise has lost many of her previously acquired skills over the year, I am so thankful that she is still able to sing!

Today this year has been a much better day.  We are enjoying a day of respite at the Ryan House.  Our good friends, the Hauer family came by today and played with us for a while here.  It was so great to see them again!  They are such amazing people!

11 Things I've Learned Since Becoming a Special Needs Parent

I came across this post early this morning after being up multiple times throughout the night with our two special children.  These are all feelings I feel or have felt throughout the last 3 years.  She really hit the nail on the head with this one!  There is so much guilt, love, anger, frustration, uncertainty, and incredible joy that I feel throughout our journey.  I'm glad I am not the only one who feels this way and that someone had the ability to share.  Excellent post!